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Monday, November 19, 2007
Like finding the owner's manual under the bed
Our younger son, Yonah, has some sensory and information processing issues. By this I mean that he doesn't always process information in the same way as most of the world. He is making great progress in this respect, but we still sometimes find ourselves speaking to him... only to find him unreceptive because he is busy broadcasting his own urgent distress signals for our attention.
Example: Yonah wants a glass of chocolate milk. Right now! Right this very second!!! His thirst for chocolate milk is so great that he can't imagine a world without this cold, refreshing beverage. And for all he knows, he is the only person in the world not enjoying chocolate milk at that moment.
Even as Zahava or I tell him that, yes, we would be glad to pour him some 'choco' he will continue to ask with an ever greater sense of urgency. He observes us taking out the milk and the glass and the chocolate powder, but there is still somehow enough uncertainty about the end result in his mind that he can't bring himself to stop asking (demanding, by this point).
This is but one small example of something to which we are actually saying 'yes'. So you can probably imagine what it's like when we have to pretend to be responsible parents and say 'no'. Even if Yonah understands on some level that his request is unreasonable (e.g. for salami or chewing gum... or both!... for breakfast), once he has asked for it and imagined how wonderful it would be to get it... he can't seem to back away from the idea.
Enter my brilliant wife.
One of the professional staff involved with Yonah's gan suggested that part of the problem might stem from his inability to see anyone or anything else in the situation once he has asked for something. He is a very bright little boy and is extremely eager for approval and reassurance. So, she suggested that Zahava make a bunch of exaggerated drawings of faces showing happiness, anger, sadness, disappointment, etc., so that when Yonah begins revving himself up we would be able to draw his attention to the way we were feeling by making him look at the appropriate drawing.
Zahava took it one step further. She figured that if a drawing of a face was good, then a real face would be better.
The next time Yonah went on one of his chocolate milk jags (after already having drunk his allotment for the afternoon), she took his chin gently in her hands and made him look directly into her face... a face which she had made into an exaggerated scowl of disapproval.
She asked him, "Yonah, what face does Ima have on?", to which he answered, "An angry face". That seemed to break the spell because he simply shrugged and asked if he could go watch a movie... the chocolate milk apparently all but forgotten.
The way she described the event to me later was as though she had suddenly found the owner's manual for the kid while straightening up his room. She was that elated!
This morning while I was making the coffee and starting to put out breakfast for Yonah, he walked over to one of the 'out of bounds' cupboards (where the treats are locked away) and began demanding Bisli (a horrible salty-onion flavored crunchy snack that Israeli kids love only slightly less than the old standby; peanut flavored Bamba.*) in a very loud voice.
I gently explained that Bisli was not a breakfast food (I'm actually not sure it qualifies as any kind of food!), and that I wanted him to have Cheerios instead. He continued tugging at the cabinet handle and demanding Bisli with the familiar increasing urgency. No matter how I tried to divert him towards Cheerios (a cereal he truly loves), he could not tear his attention from the salty snack hiding behind door number one.
I was running late and was sorely tempted to give in... but I could just imagine the look on Zahava's face when she came back from her morning walk if she found Yonah eating Bisli for breakfast. In other words, Daddy Syndrome writ large! No husband willingly sets himself up for that kind of ridicule!
Suddenly I remembered the revelation Zahava had shared with me and decided I had nothing to lose by test driving her method. So I got down on one knee... gently cradled Yonah's soft chin in my hand and directed his face towards my own (and away from the cabinet containing the Bisli). I put on a very sad expression and asked him "What kind of face is Abba wearing?".
Almost as though a spell had been broken, his eyes cleared of their Bisli-lust and he calmly said "A sad face. Abba is wearing a sad face."
I hid my surprise and continued, "And what does a sad face mean?"
Without hesitating he responded "It means I'm having Cheerios for breakfast".
I swear I kissed that little boy's happy face in so many places that I'm surprised he still has any skin left. It was so wonderful to find a perfectly rational little four year old hiding underneath that veneer of unchecked wants and needs.
I couldn't help thinking back to the way Zahava sounded when she first told me about her success. It was, indeed, a lot like finding Yonah's operator's manual.
Look, I have no illusions that we still have a long road ahead of us in terms of helping Yonah catch up with his peers and then make his way in a world full of people who don't have to contend with the sensory and processing issues that he does.
But this small victory was so satisfying I can barely describe it here. It was not a victory of us over Yonah... but rather a victory whereby we and Yonah were suddenly (miraculously!) on the same side, facing... and overcoming... new challenges together.
More Info on these horrid snack foods Here.
Posted by David Bogner on November 19, 2007 | Permalink
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Wait... I don't get it.
What's wrong with salami (and eggs) for breakfast?
Posted by: Mike Miller | Nov 19, 2007 1:06:47 PM
A few additions, if I may....
1) For your readers to fully appreciate the intensity of Yonah's urgent demands, I would simply suggest they recall the scene in Rain Man where Charlie Babbit pulls off the road and asks a complete stranger to allow him and Raymond into her home to watch Wopner!.... Yup! it's THAT intense, and NO! I am NOT exaggerating!
2) There was a bit more to yesterday's interchange.... I actually asked him why Ima was wearing her angry face and he was able to make the connection between his refusal to accept "no!" Now THAT, my friends, made me feel like the "priceless" of a Mastercard® commercial!
3) We have been having some problems keeping Yonah in bed after his official "story-lying down-shema-covers-and-kiss-ritual." Last night, when I tucked him in, I made an exaggerated smiley face and asked him to identify the emotion. Bright lad that he is, he said, "Ima happy because Yonah in bed." When I asked him which face I would be wearing if he got out of bed, he appropriately responded with "angry-Ima-face." I asked him which face he preferred, and he answered, "Happy-Ima-face! Yonah stay in bed?!" (And he did! YAY!!!!!!!)
4) The real goal of the pictures is to help Yonah identify what HE feels. This is the first step in teaching him how best to channel his emotional energy. But as I saw him begin to spin out of control, I thought focusing on my face might be a good way of changing the dynamic of the situation.
5) Long. May. This. Last!
Posted by: zahava | Nov 19, 2007 1:12:15 PM
The longer I work in the field of early childhood education (and interact with my own delightful young'uns), the more amazed I am at how the sensory processing system works - and how difficult it can be for a person when there is some glitch in the wiring. Working with some amazing OT's (as a teacher and as a mom) has given me a bit of insight into those children who in the past might have been dismissed as "annoying" or "hyper" or even as being mentally ill. Kudos to Zahava and to you (and to his gannenet for the original suggestion) for finding one of the keys to understanding Yona! Those owner's manuals can be so hard to understand sometimes (who writes those thing?); it's great that you've at least found yours. I'm sure it will make you ALL a little happier.
Debbie
Posted by: Debbie | Nov 19, 2007 1:50:17 PM
What a great story! Sounds like you've come up with a good way of communicating. I remember as a small kid that a look from my mom's face would tell me all I needed to know and I would straighten up, and she sure did use that skill on me. It worked well, until I got to be a teenager :)
Posted by: Steve Bogner | Nov 19, 2007 1:53:40 PM
A great post.
Posted by: Elder of Ziyon | Nov 19, 2007 2:32:28 PM
I love bissli. I think Yonah and I would hit it off.
Posted by: Benji | Nov 19, 2007 2:40:35 PM
my OT sister-in-law suspected her daughter's sensory integration issues and found a wonderful OT to help her -- she's a new child! it's just unbelievable the things we know now how to help kids with issues beyond the scope of the usual.
Posted by: nikki | Nov 19, 2007 2:42:06 PM
Can someone help me to look for the manual for my kids? Please? I've looked under the bed...
That must have been a fantastic experience!!!
By-the-way, salami is a perfectly acceptable breakfast food here...
oh, and Bisli sounds pretty nasty. :-)
Posted by: nrg | Nov 19, 2007 2:48:26 PM
I treasure those rare moments of "perfect parenting". It's so great when we get it right!
Thanks for sharing!
RivkA
Posted by: Rivka with a capital A | Nov 19, 2007 2:59:28 PM
Mike Miller... Nothing. In fact, I am famous (at least among my family) for my salami & eggs. I sometimes even make loof and eggs! But that is a treat that I make on special Friday mornings. If we gave Yonah salami every time he asked for it we would be scheduling him for an angioplasty before he started Jr. High!
zahava... Thanks for filling in between the lines sweetie.
Debbie... We have had similar moments with the other kids, but their 'issues' have been so much less pronounced that the breakthrough has seemed a little less dramatic. :-) I guess what I described is something all parents go through with their children... just under an electron microscope.
Steve Bogner... To this day I know from one glance if my mother approves or disapproves of something I've said or done. :-)
Elder of Ziyon... Aw shucks.
Benji... I'm sure there are other commonalities. ;-)
nikki... not to mention all the things we didn't know that will land our kids in therapy for years. :-)
nrg... Like I said to Mike... I love salami as part of a special breakfast. But if it is not what pediatricians recommend as a regular thing. aside from the fat, it is loaded with nitrates and other chemicals. I mean seriously, why not just give the kid a bottle of vodka and a deck of smokes before sending them off to school?! :-)
Rivka with a capital A... It really comes down to luck rather than skill. Unfortunately those moments are more like winning at the slot machines than coming out ahead at black jack or poker.
Posted by: treppenwitz | Nov 19, 2007 3:17:07 PM
What happened to the tissue alert symbol?!
I'm so happy for your success and hope you continue to find the "keys" to communicating with Yonah.
Posted by: Rachel | Nov 19, 2007 3:23:34 PM
That's wonderful news!
By the way, a friend of mine revealed to me that Bisli are simply deep-fried pasta. Makes much more sense to me :)
Posted by: tnspr569 | Nov 19, 2007 6:39:53 PM
Awesome.
Posted by: SaraK | Nov 19, 2007 7:34:03 PM
Oh this is wonderful news, I'm delighted for you! It must make life seem - and be - so much more manageable, so much more enjoyable and light. I truly am ecstatic, congrats on the humungous breakthrough!
Posted by: Lioness | Nov 19, 2007 11:11:48 PM
Wouldn't it be nice if we all came with owner's manuals?
Lucky Yonah for having such patient and understanding parents.
btw - Bisli can be oddly addictive if you're in the right mood.
Posted by: mata hari | Nov 20, 2007 4:20:27 AM
that is simply...a lovely story.
Posted by: cruisin-mom | Nov 20, 2007 5:35:20 AM
yonah is clearly brilliant- bisli over cheerios any day!
Posted by: rebecca | Nov 20, 2007 6:15:18 AM
I mean seriously, why not just give the kid a bottle of vodka and a deck of smokes before sending them off to school?!
Are you crazy?! Ain't no way I'm giving my kid cigs before school... let him buy his own!
c"v
:)
Posted by: Mike Miller | Nov 20, 2007 6:43:06 AM
Brilliant parenting from both of you! And a great story too :-)
Posted by: annie | Nov 20, 2007 1:16:41 PM
I must have been like Yonah when I was four. My father loves to regale the family with the story of how I demanded chocolate pudding for dinner, only to be told by Momma, No, you can have some for dessert. But I kept pestering her, and had to watch her make it...and then for revenge, she made something I didn't like for dinner, telling me I could only have my pudding if I ate my dinner.
WELL! I DID eat my dinner, but I thought I would make her pay by not having any pudding, and, according to my dad, I crossed my arms across my chest and stuck out my bottom lip and said that I didn't WANT her dumb old pudding....
At that point, Momma decided that I should wear the pudding, and she poured the entire bowl over my head. My father's reaction: Lament that he didn't take a picture of it.
Posted by: Jauhara al Kafirah | Nov 20, 2007 4:55:48 PM
Rachel... You think you had tears in your eyes?!
tnspr569... When you have kids of your own you'll also be a little wary of giving anything 'deep fried' to your kids for breakfast. trust me. :-)
SaraK... Yes, it was quite a moment.
Lioness... Thanks. I really feel like we've had a breakthrough.
mata hari... Patient? Moi??? :-)
cruisin-mom... And simply a lovely little boy. BTW, hope your birthday was special.
rebecca... I see we can scratch you off the babysitter list. :-)
Mike Miller... That's the spirit. :-)
annie... occasionally we get it right.
Jauhara al Kafirah... Well, at least your parents seemed determined that you'd get your money's worth out of therapy. :-)
Posted by: treppenwitz | Nov 20, 2007 5:49:19 PM
yay! i am so happy for you and this wonderful breakthrough.
its all small steps leading to many wonderful destinations.
Posted by: weese | Nov 20, 2007 7:54:57 PM
Sooo cute. Kiss him immediately on both cheeks for me a bunch of times.
Posted by: Alice | Nov 20, 2007 11:50:15 PM
It's good to crave chocolate; it's even better to eat/drink it!
Posted by: Schvach | Nov 21, 2007 12:30:02 AM
why not just give the kid a bottle of vodka and a deck of smokes before sending them off to school?! :-)
We prefer a bottle of Dom and a pipe. Works wonders for making it with the intellectual 7 year-olds.
Posted by: Jack | Nov 21, 2007 7:24:41 AM
weese... From your lips to G-d's ears. :-)
Schvach... Words to live by. :-)
Jack... I didn't know that tweed jackets (with leather patches on the elbows) came in toddler sizes. :-)
Posted by: treppenwitz | Nov 21, 2007 7:47:15 AM
Is it possibly that Yonah responds more to visual communication than to verbal communication? One way or the other, I'm delighted that you've found a "bypass strategy" that gets you around one of Yonah's challenges. Best of luck.
Mom of special ed. kid
Posted by: Shira Salamone | Nov 21, 2007 11:01:55 PM
Shira: he most DEFINITELY responds more to visual communication than verbal. Yonah's auditory processing skills/circuitry are not on par with the rest of his neuro-motor development. We are fortunate that he is in a gan with an extremely holistic approach -- all instructions are given both aurally and in pictograph form, making it easier for him to experience success!
Posted by: zahava | Nov 22, 2007 9:06:20 AM
MAYBE THIS SITE CAN HELP A BIT
http://www.handspeak.com/tour/kids/
Posted by: asher | Nov 23, 2007 2:36:17 PM
Having been born in Israel and raised in the States, I have a weakness for both countries' unhealthy snacks. FYI, the original "bisli" is actually felafel flavoured - Yummy!. Bamba is equally addictive and is probably the only reason I got married and had children - to justify my bamba addiction. I am equally addicted to peanut butter which makes my wife wretch.
Posted by: Avner | Nov 23, 2007 4:21:31 PM
Who said anything about Bisli for breakfast? :)
And I'm not a fried-food person, either...
Posted by: tnspr569 | Nov 26, 2007 3:06:19 AM
It is so encouraging when you find something that works, even if to the rest of the "normal" world it seems small and insignificant.
I remember noticing on our oldest daughter (who's now 13 and who suffers from a host of mental illnesses) when she was very young that when she would make the shift into Irrational Land or Defiant City, she would "set her jaw" in an odd way, as if she were clenching her teeth together. I would ask her to "change her mouth" and it would almost magically eliminate the mood.
I've also used the "look at my eyes" insistence from day-one, and it definitely improves the obedience factor. Not so much now, as a teenager, but that's another story altogether.
I will continue to pray for you (if that's okay) and I hope you'll pray for us, too. Living with His Special Ones is not easy, and it often drives us right into His lap to heal our broken hearts.
I love your blog.
Posted by: GradualDazzle | Nov 30, 2007 5:58:07 AM
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